FINDING A TREATMENT FOR LAM
The LAM Treatment Alliance is a 501(c)(3) non-profit organization exclusively dedicated to fostering and funding research to find a treatment for LAM (lymphangioleiomyomatosis) in the fastest time possible. Each year, this progressive multi-system disease, fatal in the lungs, strikes thousands of women in the U.S. and many more worldwide. Since its inception, the LAM Treatment Alliance has grown to become a critical convener for the field, forging relationships with and among academia, industry, government agencies and other private funders.
Every year, the Alliance brings together hundreds of leading scientists from around the globe for meetings and workshops dedicated to prioritizing research areas with significant leverage and high impact. These meetings provide an encompassing view of the field which is vital to the Alliance’s strategic research funding approach. We identify and target funds and problem-solving resources to areas with the greatest likely impact for patients and at the same time advance understanding of more common serious diseases.
Please contact us at info@LAMTreatmentAlliance.org with “Tissue” in the subject line if you are interested in learning more about how you can help researchers fast-track treatment research by gaining critical access to your lung, kidney, lymphatic and other tissues.
*More opportunities for patients to help advance treatment research…
LAM JAM 2007
The Indiana Chapter will be hosting LAM JAM 2007 on August 25th from 6:00pm to 10:00pm.
Read more about LAM JAM 2007 at the Indiana Chapter page or see the flyer…
Go to the DONATE NOW page of this site to buy LAMJAM tickets online! Thank you! See you there!!!
Monthly multi-disciplinary research meetings at Harvard Medical School:
Thank you to over 100 researchers, our sponsors and key supporters: Harvard Medical School Department of Continuing Medical Education, The Tuberous Sclerosis Alliance, Harvard Medical School – Department of Genetics, Starbucks, Dixon Yun – Children’s Hospital, LAM Treatment Alliance staff and Volunteers for making the second year of the LAM/TSC Seminar Series provocative and productive. We look forward to seeing you at our kick-off in September!
In the meantime, please click here to join the meeting list or click here to access past meetings. Please write to LAM/TSC@LAMTreatmentAlliance.org with “speaker suggestion” in the subject line to suggest upcoming speakers. Thank you!
Welcome or Our Indiana Chapter!
LTA Indiana officially has a webpage, click here to see the Indiana chapter page. LTA Indiana is hosting benefit rides to raise money in the fight against LAM! Click here for more information…
LAM patient Monique Coles’ brother and sister-in-law (Dave and Kris Mason) climbed the tallest mountain in Africa to support LAM Treatment Alliance’s effort to move mountains in finding an effective treatment for LAM! Onward!
Global LAM Summit Update
Our global LAM Summit was held in the Nobel Forum at the Karolinska Institute in Stockholm Sweden on February 25/26, 2007. Critical developments regarding patient / researcher coordination as well as breaking scientific developments emerging from the meeting, coming soon!
In the meantime, click here for more info on Summit aims, participants and logistics
For relevant science background papers and information about those currently working on the disease and those leaders in relevant fields who have been recruited to help us find an effective treatment, please go to:
*Click on Contact Us to see our latest CAREER OPPORTUNITIES!
WHAT IS LAM?
(Lim FAN jee-o LYE-o MY-o ma TOE-sis)
An ugly name for an ugly disease – in urgent need of research funds.
LAM is a metastatic disease affecting the lungs, the kidneys, the lymphatic system, and at times, the brain. LAM is fatal in the lungs as thin-walled cysts progressively destroy healthy lung tissue. It affects women and those who love them. There is no effective treatment and no cure. LAM frequently attacks women in their childbearing years. It kills women from all races, class backgrounds and countries by suffocating them to death. Pregnancy may accelerate the disease. LAM is not hereditary, but does result from one or more genetic mutations.
LAM is caused by a defect in a cellular pathway that regulates cell growth and has been implicated in many forms of cancer (breast cancer, prostate cancer, melanoma, lung cancer, colon cancer as well as atherosclerosis, tuberous sclerosis and diabetes). Scientists believe that advancing understanding of LAM represents a relatively clear opportunity to control this growth pathway, and as a result, to help create treatments for thousands of people affected by cancer.