Spread the Word – Ways to Raise Awareness about LAM and the Urgent Need for LAM Research

Public Speaking:
Are you or someone you know affected by LAM or another rare disease? Are you willing to share your story on our website, in other public ways?

Consider arranging to speak before one of the groups you’re involved with in your personal or professional community. Not sure who to pitch? Below is a list of suggestions! Not sure how to prepare? We or your local Chapter can help you to adapt talking points and shape your story!

• High School science classes (e.g. Harvard-Westlake, the Brentwood School)
• Graduate School Reunions (e.g. Harvard School of Public Health)
• High School Assemblies
• Community Organizations/ Associations (e.g. Rotary; Women’s groups)
• Church Services
• Synagogue Services
• Professional Meetings/ Association Meetings(e.g. Public Responsibility in Medicine and Research – PRIM&R)
• Book Groups
  Your story matters! Are you a family member of someone with LAM?

Email us with your name and contact details if you are interested in doing public speaking. Email: info@LAMTreatmentAlliance.org

Propose News Angles (pitches):

• Do you have a newsy angle on your / a family member’s story with LAM?
• Tell us about a current event/ major news story that relates to LAM / your experience!

Or, tell us about your willingness to tell your story by sending an email to us with the subject heading “Pitch Idea” at:

pitchideas@LAMTreatmentAlliance.org

Send an E-Mail:

You can send E-Mails to your friends, family members, co-workers, other members of your networks about the LAM Treatment Alliance. Simply enter their E-Mail addresses in the fields below, then add your "signature" and E-Mail address and hit 'Press to Send E-Mail(s)'. You can also add a personal P.S. to the end of the E-Mail message sharing what this cause means to you! That will help them to take your note to heart. If you have more than one email address you want to send it to, then place them all in the "E-Mail to:" field separated by commas. If you have more than 5 people to E-Mail, simply return to this form and repeat the process. Fields denoted by an asterisk (*) are required.

I just learned about a great new effort to help fast-track a treatment for Lymphangioleiomyomatosis or LAM, a fatal disease that only affects women, usually during their childbearing years and I thought you might be interested in it as well. There is currently no treatment for LAM and this organization is at the leading edge of research. It’s exclusive mission is to find one using strategies that streamline and traditional approach to funding medical research. The good news is that researchers believe that LAM, although rare, can teach us about more common serious diseases including breast cancer, prostate cancer, melanoma, atherosclerosis and diabetes and, we can likely find a treatment for LAM using a cocktail of existing drugs! With your help, they may find an effective treatment for LAM in the near future and gain insight into those other serious diseases. Your help may make the difference in this life-saving mission!

You can help women and families devastated by LAM and also play a role in conquering diseases that affect so many more lives. The LAM Treatment Alliance story is inspiring and by spreading the word and checking out the site, you can make a real difference in this fight! If you would like to learn more about the LAM Treatment Alliance or visit the website at www.LAMTreatmentAlliance.org Thank you!