Research

American Lung Association
www.lungusa.org

American Thoracic Society
www.thoracic.org

Boston LAM/TSC Seminar Series
www.bostonlamtscresearch.org

Boston LAM/TSC Seminar Series - Harvard Medical School
www.bostonlamtscresearch.org/sponsors.html

Brigham and Women's Hospital
www.brighamandwomens.org/

Children's Hospital Boston
www.childrenshospital.org/

Children's Hospital Informatics Program
www.chip.org

Dana-Farber Cancer Institute
www.dana-farber.org/

Harvard Medical School
hms.harvard.edu/hms/home.asp

Langer Lab - MIT
web.mit.edu/langerlab/

Massachusetts General Hospital
www.mgh.harvard.edu/

National Institutes of Health Office of Rare Diseases
rarediseases.info.nih.gov

National Heart, Lung and Blood Institute
www.nhlbi.nih.gov

Rare Lung Diseases Consortium
rarediseasesnetwork.epi.usf.edu/rldc/index.htm

Systems Biology at Harvard Medical School
focus.hms.harvard.edu/2004/Sept17_2004/systems_biology.html

The LAM Foundation
www.thelamfoundation.org/

Tuberous Sclerosis Alliance
www.tsalliance.org

Databases

ClinicalTrials.gov
National Institutes of Health
www.ClinicalTrials.gov

LAM Studies
http://clinicaltrials.gov/search/term=lymphangioleiomyomatosis
Lung Transcriptome

lungtranscriptome.bwh.harvard.edu

PubMed

National Library of Medicine
www.ncbi.nlm.nih.gov/entrez

Nobel Prize in Medicine 1998
nobelprize.org/medicine/laureates/1998/presentation-speech.html

LAM Research
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=search&db=pubmed&term=lymphangioleiomyomatosis

Rare Disease Advocacy Organizations

National Organization for Rare Disorders
www.rarediseases.org

Patient Stories

Newly married and starting out on her career, Mara Rezo thought she had the world at her feet. However, at 25 a diagnosis of LAM saw the breakdown of her marriage and shattered her dreams of motherhood. Now working part-time and keeping as fit as she can with yoga, Mara is doing her best to manage the ill effects of the disease.
http://video.google.com/videoplay?docid=6855465237273246926

Patient Support Groups

AELAM: Asociación Española de Linfangioleiomiomatosis (Spain)
www.enfermedades-raras.org/entpat/m10000015.asp

ARDS Foundation
www.ardsfoundationil.com

Associação LAM Do Brasil (Brazil)
www.alambra.org.br

Association FLAM - France Lymphangioléiomyomatose (France)
www.orpha.net/nestasso/FLAM

Associazione Italiana Linfangioleiomiomatosi (Italy)
www.ailam.it

The Carol and James Herscot Center for Children and Adults with TSC at Massachusetts General Hospital
www.massgeneral.org/tsc

J-LAM (Japan)
j-lam.org

Klinik für Pneumologie (Switzerland)
www.dim.unizh.ch/pneumo/index.htm

LAM Action (UK)
www.lamaction.org

LAM Australasia Research Alliance (LARA)
www.lam-aus.org/

LAM Australia
www.lam.org.au/

LAM Canada
www.lamcanada.org

LAM Foundation (US)
www.lam.uc.edu

LAM Selbsthilfe (Germany)
lam-info.de

Living with TSC
http://www.massgeneral.org/livingwithtsc/affects/lung2.htm

National Home Oxygen Patients Association
www.homeoxygen.org

New Zealand LAM Charitable Trust
www.lam.org.nz

Tuberous Sclerosis Alliance
www.tsalliance.org