Email:
info@lamtreatmentalliance.org

Mailing Address:
87 Garden St.
Cambridge, MA 02138
USA

Physical Address:
64 Church St., 2nd Floor
Cambridge, MA 02138
USA

Phone:
617-460-7339
Fax:
617.864.0614

Job Postings:

• Director of Operations (COO)
• Director of Research
• Science Coordinator
• Development Coordinator

Director of Operations (COO)

DEPARTMENT N/A
CLASSIFICATION: ED400-499
REPORTS TO: Founder, LAM Treatment Alliance
DATE: May 20008

Organization Overview

The LAM Treatment Alliance (“LTA”) is a 501(c)(3) non-profit organization dedicated to fostering research and patient partnerships in order to find a treatment for LAM (lymphangioleiomyomatosis) in the fastest time possible. LAM is a rare and fatal disease that affects women in their childbearing years. LAM is fatal as thin-walled cysts progressively destroy healthy lung tissue. It causes shortness of breath and suffocates its victims to death as the disease progresses. There is no effective treatment.
The LAM Treatment Alliance mobilizes expertise, eliminates barriers to treatment research, funds and fast tracks core research and supports patient links to clinicians, other patients and researchers. Each year, this progressive multi-system disease, fatal in the lungs, strikes hundreds of thousands of women across the globe. Since its inception, the LAM Treatment Alliance has grown to become a critical convener for the field, forging strategic collaborations with academia, the pharmaceutical industry, government agencies and other private individual, community / corporate supporters. This fast paced, entrepreneurial environment commands high energy, proactive problem-solving abilities and a can-do attitude.

Position Overview

This newly created position was established in order to support the mission of the organization. The candidate will manage the day-to-day operations of the organization, including working with the Founder to develop and execute a strategic plan that ensures all organizational objectives are realized.
The Director of Operations will be responsible for building the organizational infrastructure to support the day-to-day office operations including hiring and training of staff, developing and refining office and human resource policies, procedures and protocols for effectiveness, efficiency and quality control. The Director of Operations will also be responsible for managing, motivating and training the staff and interfacing with many of our external consultants -- including organizing the team, including interns, in order to increase overall productivity, setting clear objectives, defining individual and team responsibilities, and holding everyone accountable to high standards in order to ensure successful outcomes in record time.
The Director of Operations will work with the financial and regulatory compliance team to ensure maximum impact and compliance requirements are met; with the communications team to help develop and execute a well-defined communications/ marketing strategy targeting patients, families, clinicians, researchers as well as the general public; with the scientific / research team to help execute and improve all programs; and finally, with our development strategy to develop, implement and manage the fundraising process.

Job Responsibilities

• Management:
• Build, lead and motivate team to achieve all organizational objectives.
• Manage LTA staff. Provide strong day-to-day leadership presence including guidance and mentorship as appropriate.
• Ensure that work-flow is smooth, anticipate and address disturbances (IT etc.)
• Manage relationships with consultants/vendors, including monitoring content, negotiating contracts, regular quality control, as needed.
• Coordinate staff development and training.

• Operations and Regulatory Compliance:
• Ensure ongoing alignment with organizational strategy, budget, financial and regulatory imperatives for non-profit corporations.
• Work with finance team to produce annual reports for the organization.
• Develop procedures and protocols for ongoing organizational activities to ensure smooth operations and ongoing communication.
• Oversee weekly staff meeting and best practices for managing up and down throughout the organization.
• Administer Human Resource policies.

• Programs:
• Work with the science/programs team to develop procedures and protocols that provide infrastructural and staff support to ensure events (ex. seminar series, summits) and clinical partnership-related goals and timelines are met.
• Work to ensure IT / database infrastructure maximizes technology and existing data to most effectively anticipate our needs to advance our mission.

• Development
• Work with the Founder to develop fund raising strategies
• Work with the staff to manage fund raising process including events held by LTA Chapters
• Work to ensure IT/database infrastructure most effectively provides information needed to grow our funding capacity.
• Work with Founder and staff to achieve organization’s goal of double digit increase in funds raised annually

• Communications:
• Work in conjunction with the Communications team to help build awareness for our mission and strategic aims.
• Write and/or edit marketing collateral materials (including website content), as needed.
• Enhance donor relations by cultivating existing and new high and low yield donors.

Qualifications

• A minimum of 6 years non-profit management experience
• Masters of Business Administration, or equivalent knowledge/experience, preferred. Bachelor of Arts or Bachelor of Science in related fields (Communications, Economics, Science, and Business) desired.
• A passion for the organization and its mission.

Skills and Experience

• Proven track record for meeting organizational objectives with experience in general management, business development, marketing, development/fundraising, and/or operations.
• Strategic thinker with excellent attention to detail who can creatively develop, clearly articulate, and skillfully execute/implement the organization’s strategic plan with ample attention to quality control.
• Strong leadership, mentoring and team building abilities a must.
• Ability to communicate clearly with a wide range of stakeholders, including board members, scientific advisors, donors, patients, interns vendors, and consultants.
• Experience working in a nonprofit organization and/or a healthcare organization required.
• Ability to work and drive productivity in a dynamic, fast paced environment.
• Outstanding written, verbal and presentation skills essential.
• Detail-oriented and self-motivated with high level of initiative/ inner drive to perform a must.
• Significant performance-based experience with Excel, Word, PowerPoint required. Practical knowledge of at least one donor database software is required.

Working Conditions and Culture

Highly dynamic entrepreneurial / start-up office environment with frequent deadlines; open door policies apply; collaborative team effort focused on maximum efficiency and greatest impact; Work may entail working late or on weekends, and/or traveling to conferences/trade shows (no more than twenty percent (20%) travel expected).

Overall Responsibilities

The above statements are intended to describe the general nature and expectations for this role. They are not intended to be construed as an exhaustive list of all responsibilities, duties and skills required.

visit us at: http://www.LAMtreatmentalliance.org.

Director of Research

DEPARTMENT N/A
Type: FULL TIME / PERMANENT
REPORTS TO: Founder, LAM Treatment Alliance
DATE: May 20008

Company Overview
The LAM Treatment Alliance (“LTA”) is a 501(c)(3) non-profit organization dedicated to fostering research and patient partnerships in order to find a treatment for LAM (lymphangioleiomyomatosis) in the fastest time possible. LAM is a rare and fatal disease that affects women in their childbearing years. LAM is fatal as thin-walled cysts progressively destroy healthy lung tissue. It causes shortness of breath and suffocates its victims to death as the disease progresses. There is no effective treatment. The LAM Treatment Alliance mobilizes expertise, eliminates barriers to treatment research, funds and fast tracks core research and supports patient links to clinicians, other patients and researchers. Each year, this progressive multi-system disease, fatal in the lungs, strikes hundreds of thousands of women across the globe. Since its inception, the LAM Treatment Alliance has grown to become a critical convener for the field, forging strategic collaborations with academia, the pharmaceutical industry, government agencies and other private individual, community / corporate supporters. This fast paced, entrepreneurial environment commands high energy, proactive problem-solving abilities, and a can-do attitude.

Position Overview
This newly created position was established in order to support the advancement of science, the primary mission of LTA. The Director of Research will lead the development and successful implementation of the organization’s model for moving scientific ideas from bench to bedside and bedside to bench in a way that coordinates, maximally leverages, develops and nurtures strategic resources and partnerships including business and clinical operations, interaction with global clinical trials committee; scientific prioritization of projects the organization directly funds and/or fosters including development of target drug validation pipeline feeding into clinical trials network and strategic plan; development of effective global data systems to eliminate redundancy and serve translational aims in the fastest time possible; lead the organization in implementation of innovative clinical trial design with regard to Phase 1, IIA and possibly, III clinical trials at a national and international level.

Job Responsibilities

• Management:
• Manage relationships with external constituents including Board of Directors, Scientific Advisory Board, LAM researchers, Scientific Director of the LAM Center of Excellence at Brigham and Women’s Hospital, partner Foundations, scientific community, clinical and industry partners.
• Build, lead and motivate research team to achieve all organizational objectives. Provide strong day-to-day leadership presence including guidance and mentorship as appropriate.
• Develop and refine grant policies and procedures for effectiveness, efficiency and quality control.
• Programs
• Scientific Agenda –
• Will work with the Founder to develop and be responsible for the implementation of the organization’s long and short-term translational research strategy.
• Work with experts in the drug development field to identify potential research opportunities and to analyze the effectiveness of current technologies to support LTA’s scientific portfolio.
• Recommend and implement innovative programs to speed drug development consistent with the scientific agenda.
• Oversee the organization’s use of funds to support LAM research. Responsible for ensuring LTA grant programs reflect scientific agenda and the organization’s mission to fast track LAM research.
• Provide oversight of the organization’s scientific meetings/summits programs including agenda and attendee list development, provide leadership over external and internal science programs, and follow through on key initiatives derived from programs.
• Play a key role in developing and driving teams drafting Phase 1- IIa clinical trial protocols.
• Business Development
• Develop collaborations with, but not limited to, industry, academia, government and other Foundations to support the organization’s translational research mission.
• Communications
• Provide a consistent and professional voice inside and outside the organization.
• Communicate key program successes to Director of Operations for release to internal and external constituents.
• Edit science-based marketing materials as needed.

• GENERAL: Performing other duties, as requested.

Qualifications

• MD with strong clinical research experience and/or PhD in a field relevant to tumor suppressor syndrome biology and or signaling pathways relevant to LAM and its potential treatment with clinical research experience.
• Experience integrating quantitative science and modern biology and a multidisciplinary orientation towards innovative infrastructure development to facilitate collaboration between disciplines; laboratories and academic, non-profit and industry partners.
• Candidates would ideally have some training in pulmonary medicine; cancer biology; endocrinology; molecular biology; biochemical engineering; molecular imaging; immunology and other areas.
• Experience working on a multi-center clinical trial with a grasp of overall scientific, operational and regulatory challenges.
• Experience drafting clinical protocols for Phase 1 and or IIa trials.
• A minimum of 8-10 years of combined academic/medical research-focused non-profit/ industry experience.
• Strong desire to work with high ranking scientific leaders and help to find a treatment/cure for LAM.
• A passion for the organization and its mission.

Skills and Ability Required

• Strategic thinker with excellent attention to detail who can creatively develop, clearly articulate, and skillfully execute/implement the organization’s strategic plan with ample attention to quality control.
• Strong leadership, mentoring and team building abilities a must.
• Ability to communicate clearly with a wide range of stakeholders, including board members, scientific advisors, donors, patients, interns vendors, and consultants.
• Experience working in a nonprofit organization and/or a healthcare organization required.
• Ability to work and drive productivity in a dynamic, fast paced environment.
• Outstanding written, verbal and presentation skills essential.
• Detail-oriented and self-motivated with high level of initiative/ inner drive to perform a must.
• Significant performance-based experience with Excel, Word, and PowerPoint required. Practical knowledge of at least one donor database software is required.

Working Conditions
Entrepreneurial office environment with frequent project deadlines. Work requires working as a team and may entail working late or on weekends, and/or traveling to conferences, seminars, summits, trade shows – etc (no more than fifteen percent (15%) travel expected).

Overall Responsibilities
The above statements are intended to describe the general nature and level of work being performed by people assigned to this classification. They are not intended to be construed as an exhaustive list of all responsibilities, duties and skills required of personnel so classified.

Science Coordinator

DEPARTMENT N/A
CLASSIFICATION:FULL TIME / PERMANENT
REPORTS TO: Director of Research
DATE: May 20008

Company Overview
The LAM Treatment Alliance (“LTA”) is a 501(c)(3) non-profit organization dedicated to fostering research and patient partnerships in order to find a treatment for LAM (lymphangioleiomyomatosis) in the fastest time possible. LAM is a rare and fatal disease that affects women in their childbearing years. LAM is fatal as thin-walled cysts progressively destroy healthy lung tissue. It causes shortness of breath and suffocates its victims to death as the disease progresses. There is no effective treatment. The LAM Treatment Alliance mobilizes expertise, eliminates barriers to treatment research, funds and fast tracks core research and supports patient links to clinicians, other patients and researchers. Each year, this progressive multi-system disease, fatal in the lungs, strikes hundreds of thousands of women across the globe. Since its inception, the LAM Treatment Alliance has grown to become a critical convener for the field, forging strategic collaborations with academia, the pharmaceutical industry, government agencies and other private individual, community / corporate supporters. This fast paced, entrepreneurial environment commands high energy, proactive problem-solving abilities, and a can-do attitude.

Position Overview
This newly created position was established in order to support the advancement of science, the primary mission of LTA. The candidate will provide a consistent and professional voice inside and outside the organization and will have varied responsibilities including (but not limited to):

• SCIENCE DATABASE MANAGEMENT:Working with senior management and colleagues to update and maintain LTA’s database (patients, scientists, physicians, vendors, interns/volunteers, and consultants), ensuring overall accuracy and thereby allowing for meaningful analysis. Manage researcher communications and follow-up through database and assume responsibility for creating scientific task calendar of events for peer review follow-up, publication work, research cross pollination efforts, etc.

• GRANT MANAGEMENT DATABASE: Identify and manage the implementation of a grant management database to accurately and efficiently track LTA programs. Working with senior management, interns and volunteers to rapidly integrate legacy data into the grant management database. Responsible for the daily management of the database including data entry, report generation, data analysis and system troubleshooting.

• SCIENCE EVENT COORDINATION: Spearheading and managing science-related event activities and logistics. Working with the LTA staff and senior management team, interns, volunteers, and outside vendors to ensure successful outcomes for all conferences, seminars, summits, retreats, etc. Events may include conferences, seminars, summits, retreats, and other scientific events. Tasks may include (but are not limited to) event agenda creation, event theme management, scientist relationship development, event and marketing material preparation and distribution, presentation management, guest list creation and management, food and beverage, on-site logistics, event set up and tear down attendee sign in, and post-event follow-up, as needed. Delegate tasks to the Event Planning staff as needed in order to increase efficiency and balance workload.

• EXTERNAL RESEARCHER LIAISON: Managing the flow of and utilizing good judgment in triaging researcher, patient, and vendor phone calls, emails, and regular mail -- while maintaining sensitivity regarding all confidential information. Assisting the LTA Founder with all science related queries and communications as needed.

• ADMINISTRATIVE:Maintaining the office scientific events calendar and scheduling internal and external meetings, keeping track of meeting agenda items, intern staffing management, etc.

• GENERAL: Performing other duties, as requested.

Qualifications

• Bachelor of Arts or Bachelor of Science (science focus favored). Masters degree in science preferred.
• Professional customer/client service experience.
• Strong desire to work with high ranking scientific leaders and help to find a treatment/cure for LAM.
• Proficiency with personal computers and outstanding working knowledge of Microsoft Outlook (Windows platform, specifically XP), Microsoft Office including Word, Excel, PowerPoint, required. Experience with FileMaker Pro, and/or other fundraising software, strongly encouraged.

Skills and Ability Required

• Prior experience with grant management process and technology.
• Strong skills in working with and exporting data from grant management databases for analytic purposes.
• Proficiency with personal computers and outstanding working knowledge of Microsoft Outlook (Windows platform, specifically XP), Microsoft Office including Word, Excel, & PowerPoint, required. Experience with donor data management technology, strongly encouraged.
• Exceptional judgment and discretion in handling sensitive and confidential issues.
• Outstanding organizational skills with unprecedented attention to detail and demonstrated ability in managing multiple projects simultaneously, while working effectively under last minute deadlines and changing priorities.
• Excellent written and verbal communication skills with demonstrated ability to communicate effectively (verbally and in writing) inside and outside the organization to all stakeholders including donors, patients, scientists, vendors, consultants, etc).
• Self-motivated, taking initiative and functioning effectively, both independently and as a member of a closely knit team, with a willingness to assist senior management and colleagues with routine and last minute projects.
• Strong interpersonal, customer service and negotiating skills, as well as outstanding problem solving capabilities.
• A positive attitude and a willingness to go the extra mile to ensure that all projects are completed successfully and in a timely manner.
• Embracing organizational values of ethics, honesty, integrity, trust, donor, patient and scientist “customer” -focus, leadership, teamwork/collaboration, and balance.

Working Conditions
Entrepreneurial office environment with frequent project deadlines. Work requires working as a team and may entail working late or on weekends, and/or traveling to conferences, seminars, summits, trade shows – etc (no more than fifteen percent (15%) travel expected).

Overall Responsibilities
The above statements are intended to describe the general nature and level of work being performed by people assigned to this classification. They are not intended to be construed as an exhaustive list of all responsibilities, duties and skills required of personnel so classified.

Development Coordinator
DEPARTMENT N/A
CLASSIFICATION:
REPORTS TO:Director of Operations
DATE: May 2008

Organization Overview
The LAM Treatment Alliance (“LTA”) is a 501(c)(3) non-profit organization dedicated to fostering research and patient partnerships in order to find a treatment for LAM (lymphangioleiomyomatosis) in the fastest time possible. LAM is a rare and fatal disease that affects women in their childbearing years. LAM is fatal as thin-walled cysts progressively destroy healthy lung tissue. It causes shortness of breath and suffocates its victims to death as the disease progresses. There is no effective treatment. The LAM Treatment Alliance mobilizes expertise, eliminates barriers to treatment research, funds and fast tracks core research and supports patient links to clinicians, other patients and researchers. Each year, this progressive multi-system disease, fatal in the lungs, strikes hundreds of thousands of women across the globe. Since its inception, the LAM Treatment Alliance has grown to become a critical convener for the field, forging strategic collaborations with academia, the pharmaceutical industry, government agencies and other private individual, community / corporate supporters. This fast paced, entrepreneurial environment commands high energy, proactive problem-solving abilities, and a can-do attitude.

Position Overview
The Development Coordinator will work with the Director of Operations to develop and grow the LTA fundraising and marketing strategies. The candidate will be an important member of a dynamic team whose goal is to help the organization meet its overall mission. The candidate will have varied responsibilities including (but not limited to):

• Development Strategy:Work with the Director of Operations to further the organization’s fundraising strategy focusing on donor relations.

• Identifying and reaching out to potential new donors
• Communicating and strengthening relationships with current donors through email solicitations, thank you notes, phone calls and in person
• Helping to build and support LTA regional chapters
• Maintaining donor related data entry,

• Events: The Development Coordinator will be responsible for all fundraising events. Tasks may include (but are not limited to) event agenda creation, event theme management, donor relationship development, event and marketing material preparation and distribution, presentation management, guest list creation and management, food and beverage, on-site logistics, event set up and tear down attendee sign in, and post-event follow-up, as needed. Delegate tasks to the Event Planning staff/volunteers as needed in order to increase efficiency and balance workload.

• Marketing: Work with the Director of Operations to enhance LTA marketing efforts including Quarterly Newsletter, press releases, website content, email blasts, and LTA’s Annual Report.
  
  
• General: Performing other duties, as needed.

Qualifications

• A minimum of 4 years professional experience in the non-profit development arena
• Bachelor of Arts or Bachelor of Science in related fields (Communications, English, Marketing, Science, and Business) desired. Masters preferred.
• A passion for the organization and its mission.

Skills and Ability Required

• Exceptional judgment and discretion in handling sensitive and confidential issues.
• Outstanding organizational skills with unprecedented attention to detail and demonstrated ability in managing multiple projects simultaneously, while working effectively under last minute deadlines and changing priorities.
• Self-motivated, taking initiative and functioning effectively, both independently and as a member of a closely knit team, with a willingness to assist senior management and colleagues with routine and last minute projects.
• Excellent written and verbal communication skills with demonstrated ability to communicate effectively (verbally and in writing) with inside and outside the organization including – donors, patients, scientists, vendors, consultants, etc).
• Strong interpersonal, customer service and negotiating skills, as well as outstanding problem solving capabilities.
• A positive attitude and a willingness to go the extra mile to ensure that all projects are completed successfully and in a timely manner.
• Embracing organizational values of ethics, honesty, integrity, trust, donor, patient and scientist “customer” focus, leadership, teamwork/collaboration, and balance.
• Strong skills in working with and exporting data from donor management databases for analytic purposes.
• Strong skills in working with Microsoft Office applications.

Working Conditions
Entrepreneurial office environment with frequent project deadlines. Work requires working as a team and may entail working late or on weekends, and/or traveling to conferences, seminars, summits, trade shows – etc (no more than fifteen percent (40%) travel expected).

Overall Responsibilities
The above statements are intended to describe the general nature and level of work being performed by people assigned to this classification. They are not intended to be construed as an exhaustive list of all responsibilities, duties and skills required of personnel so classified.

visit us at: http://www.LAMtreatmentalliance.org.

TO APPLY
If you are interested in applying for any of these positions, please send cover letter and CV to Alicia Sable-Hunt at sablehunt@edwardshunt.com. No phone calls please.